Five Years of T1D

5/22/18 marked five years since T1D diagnosis. It’s hard to believe that five years have already done by. In five years, our family turned into T1D (and gluten-free) pros. So this Diaversary was a cause for celebration of living well with and despite T1D and Celiac.

The morning of 5/22/18 started with a breakfast complete with a heart-felt whipped cream message, and V sporting her new awesome T-shirt. Pop quiz: Who can tell me what the T-shirt design means?

V wanted to mark the day by getting a treat from Starbucks. Unfortunately it was thwarted by diabetes…

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The trip had to be postponed until the following morning. But fear not, V got to check off her bucket list wish of showing up to school with a cup of Starbucks in hand.

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Then the following day came V’s quarterly Endocrinology appointment. I was curious about her A1C. Her meter and Dexcom readings were suggesting improvements. I was also curious about some other goals that V was working really hard on. When V’s endocrinologist walked into the exam room, she was practically beaming at us. She was so pleased with everything. As she was gushing praise on V for doing a great job, I tried to peek at the paper in her hand with A1C result scribbled on it. Since I was looking at it sideways and upside down, I decided that I was not seeing it right. I didn’t believe it until the Endo announced it. 6.8! V’s best A1C ever!!!

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Better yet, the Endo was also pleased with the range of V’s numbers, which is a different way of measuring quality of BG rather than only looking at the average. And there has been progress with the other goals V had been working on. In other words, success on all fronts!

The Endo suggested that we really ought to celebrate, and who are we to go against medical advice? A couple of days latter we hit our favorite breakfast joint, where V feasted on amazing gluten-free Cinnamon Roll pancakes. 100% bolus-worthy!

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As V’s Diaversary Fest was wrapping up, we decided to update our T1D and GF family photo, with all four of us wearing our matching amazing T-shirts.

 

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So, FU T1D! Here’s to 5 years of kicking its butt, and may V have her entire lifetime of living well with it!

(P.S. If you still don’t know what the T-shirt means, please guess in comments!)

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Gluten-Free Expo, 2018!

I haven’t been posting much lately. Life is busy. And then I went ahead and got me a claw…

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Being the graceful person that I am, I fell while jogging and broke my pinky. It’s hard to type without being able to use my wrist, so I have to be short and sweet.

I’m here to tell you that Gluten-Free Expo is coming to San Diego again! V and I cannot wait to go. I can’t tell you how amazing it is to be in a place where every single thing is safe for V to eat. Now that we are veteran Expo-goers, let me share some tips with you.

  1. Don’t pay full price! Use this code to get 20% off: ADVANCE
  2. Wear comfortable shoes and be prepared for a lot of walking.
  3. Come hungry! So many yummy foods to taste.
  4. If you have T1D, be prepared to do some serious guesswork and use a LOT of insulin. Little bites here and there add up quickly to a metric ton of carbs. You are likely going to underestimate them. Be prepared to dose as you go. If you have a pump, extending your bolus may be a good strategy. Give yourself a hefty dose upfront and spread out the rest over a few hours. You can always cancel extended bolus if it’s too much.
  5. The Expo is so much more than food samples. There are classes and presentations galore. Check out the schedule and attend some. You may find these programs especially beneficial if you are new to GF life.

Don’t live in or near San Diego? There may be an Expo coming to your town. Check it out and go.

Last but not least, I’ll leave you with a photo of an amazing GF cake made by our recent 16-year-old house guest. (Focus on the cake. Ignore ugly grout please.)

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100% GF. 150% amazing. And yes, it’s a little boozy too!

Disclaimer: As an official blogger, I am expected to promote the Expo in my blog. I was also provided with complimentary entry tickets. All opinions are mine.

P.S. I was planning on going to and writing about the expo well before being selected as an official blogger. Because it’s awesome.

P.P.S. I am not expected to write a review/post-expo post. But you can bet I’ll be doing it anyway!

Most-wanted gadget

V’s annual Celiac blood panel was done recently, and results are not great. Four years after diagnosis and her antibodies are still positive. Worse yet, the numbers crept up a little from last year. Last year things were heading in the right direction and her doctor was hopeful that with this blood work result everything would be in the negative. Not the case.

I’m really frustrated. What are we doing wrong? Obviously somewhere, somehow, V gets exposed to gluten. But where? Is there cross-contamination at home? We are not 100% gluten-free. We keep regular bread and bagels, cereal, some pre-packaged snacks, and that’s about it. All meals we make are gluten-free. We are extremely careful about cross-contamination. We have a dedicated toaster oven and a cutting board. But perhaps it’s not enough and we need to go completely gluten-free at home?

Or is the problem with restaurants where we eat? Once again, we found a few that we consider safe. However, because V does not typically have any reaction to gluten that she can feel or we can see, we have no way of telling if what she is eating is actually safe.

Or perhaps the issue was during the cruise, where getting a safe gluten-free meal proved to be rather a frustrating challenge? Since we did the blood work shortly after we returned, it may be reflective of possible cross-contamination there?

How I would love to know for sure. And guess what? There is actually a gadget out there that could help us. Nima Sensor will analyze a food sample and tell you if it contains any gluten. If we bite the bullet and go 100% gluten-free at home, we can test food at restaurants and maybe finally track down the source of cross-contamination.

There is one little glitch. The price of Nima Sensor is a cool $275. And that’s just for a starter kit. Since each food sample requires a new capsule, those will run you more. The website recommends a subscription of 12 capsules per month at a cool price of $60 per month. If we don’t do subscription, we have to pony up $72 for 12 capsules. Those capsules will go quickly if we want to test V’s meals when we dine out, even though we don’t normally eat out more than once a week.

So here I am, staring at this cool gadget, really wanting it. But it is simply too expensive.

What do we do? I have no idea. If you are reading this post and you have Celiac, I’d love for you to weigh in. I’m also curious if it’s a reasonable expectation for tests to be negative. It is really possible? Would you eat a product that, according to the label, was made on equipment shared with wheat, or is that a no-no? What about a product that is made in a facility that also processes wheat? It is unreasonable for us to think that we can live a normal life where we don’t wrap V in a bubble, allow her to eat at places other than home, and don’t have to be on edge about everything she puts in her mouth?

We are going back to the GI doctor later in the summer to discuss all this. Perhaps we can squeeze in another round of blood work just to rule out vacation cross-contamination. Aside from that, I’m at a loss.

As safe as it gets: samples that we got at the Gluten-Free Expo

 

Gluten-Free Expo Review

Disclosure: The Gluten-Free Media Group provided me with a complimentary admission to Gluten-Free Expo. All opinions are my own.

Gluten-Free expo was amazing. So many different products to explore! I was quite familiar with some products and approached those vendors as a true fangirl. And there were many more that were either new to me or that I have not had a chance to sample in the past.

All the swag! All the vendors!

Without further ado, I present to you some of my favorites.

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Everything by BFree. Like, everything. Breads, bagels, pita bread (yes, GF pita bread exists), breadsticks – everything is so good! I’ve heard of the brand before but this was my first time sampling it. A+

 

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These things are like crack. Seriously, you can’t eat just one. Very tasty and make great appetizers/party food.

 

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So many yummy things by this company that was completely new to me. See that chocolate cake mix? Tried it. Tastes amazing.

 

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So Delicious is so delicious. Also so blurry, sorry. Why yogurt, you ask? Isn’t yogurt normally GF anyway? Well, yes. I loved this for my own selfish reason. In my early twenties I developed mild lactose tolerance. A few years ago it got worse. Thank goodness I can still have cheese and most processed dairy products, as well as just a little bit of milk/cream. But I had to say good bye to yogurts and ice cream altogether, because doubling over in pain is so not worth it. So Delicious makes yummy coconut milk based yogurts and ice-creams. Trust me, I tried many and it’s not that easy to pull it off.

 

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Using the swag I brought back, I assembled V’s lunch later that day: a sandwich with BFree bread roll, So Delicious yogurt, and sun butter.

 

The following day I decided to bring V along. It felt great to be able to tell her that she could eat everything. How often does that happen? Almost never.

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Some of V’s favorites were Sun Butter and Milton’s chips. Yum!

So it’s lovely when everything is GF and I could say yes to everything. Except that stupid diabetes thing that did not agree with all of the sampling V had. We tried to estimate carbs best we could but ended up severely underestimating.

 

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Oops! We fixed it, using mainly insulin. For bonus points tell me at what time we arrived to the Expo? How were you able to tell?

 

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V was excited to assemble her lunch for the following day, using some of her favorite products.

 

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Last but not least, we got to try Keli’s Sauces. Sweet N Sour sauce was hands-down favorite. Not only is it delicious, it’s also pretty low in carbs, at 5 g per 1 TBS. V dips everything into it. It’s taken an honorable place alongside ketchup and it’s a place hard-earned.

I can’t wait to go to the Expo next year and if I’m lucky I’ll make it to other Expos. I highly recommend you do the same. If you go, I have a pro tip for you: go hungry or else you won’t be able to get through even a fraction of samples. Also,  you may not need another meal that day. Or ever.

Giveaway Results!

I feel like Oprah. You get a ticket, and you get a ticket, EVERYONE GETS A TICKET!

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Image Credit: Giphy

Everyone who commented on my last post gets one free ticket to the Gluten Free Expo in San Diego! Please email me using the Contact tab and I’ll give you the code.

Missed the giveaway? I have a 20% off coupon for you!

1. Visi ticketing page: http://ow.ly/t0j7306YzeQ
2. Enter promotional code ADVANCE at the top & click apply
3. Select the ticket(s) you want and & click order now

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Gluten-Free Expo, At Last!

And I’m doing my first ever giveaway! Just keep reading 🙂

I’ve heard about various gluten-free expos. I’ve read other peoples’ experiences about attending. I was ware that there was at least one big expo right here were we live. I’ve been wanting to go for-freaking-ever, but something always came up. Not any more. Move over diabetes, I’m giving Celiac some well-deserved time in the spotlight.

Because really, sometimes Celiac is even more annoying than Diabetes. Yes, really. For example, V was going on a field trip to the ice-skating rink with her class a few weeks ago. Afterwards they were going to have pizza and snacks. My very first question was, could they get GF pizza for her? Because if they could not, V would have to bring her own lunch. Not fun. And traveling while maintaining a gluten-free diet can present another set of challenges. For starters, wherever we go, we have to stay in a place that has at least a fridge and microwave, so that we can either bring food with us or buy it at a store. Finding a restaurant with gluten-free options is not always possible, so we always have to be prepared to supply V’s food on our own.

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No trip to Target is complete without stocking up on some of our GF favorites

Random fun fact #1: when we find some gluten-free products on sale, we buy them up in ridiculous quantities. Like this:

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When our favorite GF bread is on sale…

 

Anyway, I’m really excited to finally attend a Gluten-Free expo here in San Diego on February 12-13. (Random fun fact #2: Gluten Free Media Group – the company that puts together the expos – is also the same company that’s behind Find Me Gluten Free app and website. This app is a life-saver for us when we are traveling and I’ve found amazing GF restaurants with its help.)

While I know of many GF products, there are many more that I’m not aware of, and I can’t wait to explore the wonderful GF world at the expo. I am going to be  on a particular lookout for products that are GF AND diabetes-friendly. I’m also hoping to discover more local restaurants, stores, and other businesses that cater to Celiac community. And perhaps I can learn something new about GF living.

Want to join me at the expo? I have….DRUMROLL….a GIVEAWAY!

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I have five tickets that are good for FREE admission to one day of the event (Saturday 2/11 or Sunday 2/12). Comment on this post by Saturday 1/14/17 telling me what your favorite gluten-free product is and why you love it so. I will select five people randomly on Sunday 1/15/17. 

 

 

New Flavors of Arctic Zero

Disclosure: I received free samples for review. All opinions are my own.

I’ve reviewed Arctic Zero frozen treats last year in this post. We like them because they have lots of great-tasting gluten-free flavors and are much lower in carbs than regular ice-cream. In the beginning of this year, the company unveiled new flavors and gave us an opportunity to preview and taste them.

First, I have to give it to Arctic Zero for presentation. It’s so exciting when the box arrives beautifully packaged. IMG_2836

If you don’t live near a store that carries Arctic Zero or does not have flavors you want, you can order online and they will ship it to you, too. Pro tip: don’t touch dry ice. Not even though a bag. Because OMG OUCH!

We sampled the following gluten-free flavors: Cake Batter, Banana Pudding and Poppin’ Pomegranate.

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And we liked them all! As usual, everyone had their favorites. I didn’t think I’d like Cake Batter much but it turned out to be my favorite. V loved Banana Pudding the best. She was reluctant to try Pomegranate but liked it, too! Again, it’s helpful to remember that Arctic Zero treats are not like ice-cream. In their consistency they are more like less sweet sorbet.

Arctic Zero treats taste best when you allow them to warm up and soften for about 15-20 minutes. Also, V made up an easy smoothie/milk shake recipe that works great with either flavor:

Take half a cup of milk, half a cup of Arctic Zero, and half a cup of your fruit of choice, chopped. (We are partial to strawberries in our smoothies.) Blend everythig together in a blender for a couple of minutes and enjoy! You get a glass-full of a treat that is delicious and low in carbs (about 18 g. for the whole thing; compared to over 20 g. of carbs for half a cup of regular ice-cream.)

Cheers!

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