Where to even start?

We are getting a pump. We are getting a pump? We are getting a pump!!!

The insulin pump, of course. V will be the proud receipient but of course we will all be involved in managing it. We were under the impression that being in the honeymoon phase (where V continues to reside) would not allow her to get a pump. Color us surprised when we heard that she was on just enough enough insulin to qualify! We had a good pump education appointmet with RN and passed the nutrition eval for pump with flying colors. We will have to attend a pump basics class in min-January, get trained by pump company at home, possibly go through a saline trial, and then we start.

Which pump to choose? After doing lots and lots of research we finally decided to go with the Omnipod. It is the only tubeless pump on the market and we think it will work well for V. She tried the demo pod on her arm for 3 days and barely felt it was there. Choosing a pump is a little nerve-wrecking because it is a 4-year committment. But after researching ALL the things, we came to a point of needing to make a decision or suffer paralysis from analysis. We will also most likely be getting a continuous blood glucose monitor (CGM), specifically Dexcom. Of course all of this need to be approved by insurance. (Stay tuned for a future post complaining about how much of a pain it is.)

On November 22nd we hit our 6-month diagnosis anniversary. It is so, so much easier now. Still crazy and overwhelming, still so much information to sift through and learn, but we are in a much better place. Things have become more routine, carb counting is a breeze, we are even getting good at estimating carbs when nutritional info is not available. Insulin regimen keeps changing and it will continue to change. I think we are finally making peace with this: there is no stability. There will always be good days and bad days. There will be mistakes and frustrations. There will be circumstances beyond our control which, even if we are doing everything right, will cause V’s blood sugar to shoot up or crash. But even that is becoming more a part of our new normal. F U diabetes, but we are learning to live with you.

And then there is Celiac. At times managing a GF diet is even more daunting and irritating than managing T1D. Our son turned 6 a few days ago. We were planning to pick up a few GF cupcakes to bring for V to his party, but she very politely asked if it was possible for her to have “normal cake” because she was just really tired of cupcakes. I felt it was a reasonable request. Buying a GF cake for 20 people costs a ridiculous amount of money. So I got my son a cake from Vons and picked up a Betty Crocker GF cake mix. It actually turned out really yummy.

Other kids B-day parties are the worst. I’m procrastinating returning a phone call with an invitation for V to a B-day party at a restaurant. This is not a family we know well and I don’t even know if they are aware of V’s diagnoses. Have to call them and bring them up to speed and then ask if me or my hubby could accompany V to the party because we have to help her out with food and insulin. We will see how that goes (assuming I stop avoiding that phone call).

So the roller coaster continues and we all are hanging on and hanging in there. We are thankful that it has gotten easier and may it continue to get even easier with time.

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