Where to even start?

We are getting a pump. We are getting a pump? We are getting a pump!!!

The insulin pump, of course. V will be the proud receipient but of course we will all be involved in managing it. We were under the impression that being in the honeymoon phase (where V continues to reside) would not allow her to get a pump. Color us surprised when we heard that she was on just enough enough insulin to qualify! We had a good pump education appointmet with RN and passed the nutrition eval for pump with flying colors. We will have to attend a pump basics class in min-January, get trained by pump company at home, possibly go through a saline trial, and then we start.

Which pump to choose? After doing lots and lots of research we finally decided to go with the Omnipod. It is the only tubeless pump on the market and we think it will work well for V. She tried the demo pod on her arm for 3 days and barely felt it was there. Choosing a pump is a little nerve-wrecking because it is a 4-year committment. But after researching ALL the things, we came to a point of needing to make a decision or suffer paralysis from analysis. We will also most likely be getting a continuous blood glucose monitor (CGM), specifically Dexcom. Of course all of this need to be approved by insurance. (Stay tuned for a future post complaining about how much of a pain it is.)

On November 22nd we hit our 6-month diagnosis anniversary. It is so, so much easier now. Still crazy and overwhelming, still so much information to sift through and learn, but we are in a much better place. Things have become more routine, carb counting is a breeze, we are even getting good at estimating carbs when nutritional info is not available. Insulin regimen keeps changing and it will continue to change. I think we are finally making peace with this: there is no stability. There will always be good days and bad days. There will be mistakes and frustrations. There will be circumstances beyond our control which, even if we are doing everything right, will cause V’s blood sugar to shoot up or crash. But even that is becoming more a part of our new normal. F U diabetes, but we are learning to live with you.

And then there is Celiac. At times managing a GF diet is even more daunting and irritating than managing T1D. Our son turned 6 a few days ago. We were planning to pick up a few GF cupcakes to bring for V to his party, but she very politely asked if it was possible for her to have “normal cake” because she was just really tired of cupcakes. I felt it was a reasonable request. Buying a GF cake for 20 people costs a ridiculous amount of money. So I got my son a cake from Vons and picked up a Betty Crocker GF cake mix. It actually turned out really yummy.

Other kids B-day parties are the worst. I’m procrastinating returning a phone call with an invitation for V to a B-day party at a restaurant. This is not a family we know well and I don’t even know if they are aware of V’s diagnoses. Have to call them and bring them up to speed and then ask if me or my hubby could accompany V to the party because we have to help her out with food and insulin. We will see how that goes (assuming I stop avoiding that phone call).

So the roller coaster continues and we all are hanging on and hanging in there. We are thankful that it has gotten easier and may it continue to get even easier with time.

World Diabetes Day

November 14th is the World Diabetes Day. I was composing this long post in my head about what T1D means to our daily life, and things I am grateful about. But it’s nearly 9:30 PM, I had a long day and I am too tired to write up a long thoughtful post. And I had to go back through about 10 days of notes on V’s BG levels so that I can record them in the log book. She’s been having some bedtime and lunchtime highs, but she is still working on Halloween candy (which will be tossed by the end of the week), and because of bad allergies or a cold she had been using an asthma inhaler for a few days. So perhaps that explains the highs?

So in a nutshell, T1D means daily work. Finger pricks, insulin shots, carb counting, writing down ALL the things, studying labels, managing appointments, reading articles, correcting misconceptions, reaching yet another level of endocrinology proficiency, coming to terms with the reality of absence of true stability now and in the foreseeable future. And that’s just a tip of the iceberg. But we carry on, making it as normal as we can, and V is amazingly knowledgeable about her Diabetes management and continues to show great confidence, resiliency and good spirit. That is something to be grateful for.

Oh, and our new little portable scale arrived. We can now weigh fruit and know the exact carb count. Yay!

Our first T1D and gluten-free Halloween

To a kid with T1D and Celiac, Halloween is not the friendliest holiday. You can only eat so much candy. And you have to give yourself insulin to eat any of it. And you have to make sure candy is gluten-free. But I’d be damned if my daughter could not enjoy trick-or-treating. So we armed ourselves with two lists: Carb counts for candy and Gluten-free candy. And then we went out and had fun. Once we got home, we dumped the candy out and sorted everything. One pile was for stuff that I would not allow them to eat anyway (too gross, too hard or chewy for V’s braces, etc. ) or what they did not like. Another pile was for candy that was not gluten-free. We gave most of it away to my parents. The final pile was of approved gluten-free candy. Even before V’s diagnosis, we did not allow the kids to gorge on candy on Halloween. They would have a couple of pieces and call it a day. Thank goodness we practiced this moderation because last night was pretty much just like any other year. V chose a couple of pieces of candy, we figured out the carb count, gave her insulin, and that was that.

Halloween is about so much more than candy. V had so much fun dressing up and running around trick-or-treating with her friends. Fun was had by all. Take that, Diabetes and Celiac!