Giveaway Results!

I feel like Oprah. You get a ticket, and you get a ticket, EVERYONE GETS A TICKET!

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Image Credit: Giphy

Everyone who commented on my last post gets one free ticket to the Gluten Free Expo in San Diego! Please email me using the Contact tab and I’ll give you the code.

Missed the giveaway? I have a 20% off coupon for you!

1. Visi ticketing page: http://ow.ly/t0j7306YzeQ
2. Enter promotional code ADVANCE at the top & click apply
3. Select the ticket(s) you want and & click order now

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Gluten-Free Expo, At Last!

And I’m doing my first ever giveaway! Just keep reading 🙂

I’ve heard about various gluten-free expos. I’ve read other peoples’ experiences about attending. I was ware that there was at least one big expo right here were we live. I’ve been wanting to go for-freaking-ever, but something always came up. Not any more. Move over diabetes, I’m giving Celiac some well-deserved time in the spotlight.

Because really, sometimes Celiac is even more annoying than Diabetes. Yes, really. For example, V was going on a field trip to the ice-skating rink with her class a few weeks ago. Afterwards they were going to have pizza and snacks. My very first question was, could they get GF pizza for her? Because if they could not, V would have to bring her own lunch. Not fun. And traveling while maintaining a gluten-free diet can present another set of challenges. For starters, wherever we go, we have to stay in a place that has at least a fridge and microwave, so that we can either bring food with us or buy it at a store. Finding a restaurant with gluten-free options is not always possible, so we always have to be prepared to supply V’s food on our own.

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No trip to Target is complete without stocking up on some of our GF favorites

Random fun fact #1: when we find some gluten-free products on sale, we buy them up in ridiculous quantities. Like this:

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When our favorite GF bread is on sale…

 

Anyway, I’m really excited to finally attend a Gluten-Free expo here in San Diego on February 12-13. (Random fun fact #2: Gluten Free Media Group – the company that puts together the expos – is also the same company that’s behind Find Me Gluten Free app and website. This app is a life-saver for us when we are traveling and I’ve found amazing GF restaurants with its help.)

While I know of many GF products, there are many more that I’m not aware of, and I can’t wait to explore the wonderful GF world at the expo. I am going to be  on a particular lookout for products that are GF AND diabetes-friendly. I’m also hoping to discover more local restaurants, stores, and other businesses that cater to Celiac community. And perhaps I can learn something new about GF living.

Want to join me at the expo? I have….DRUMROLL….a GIVEAWAY!

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I have five tickets that are good for FREE admission to one day of the event (Saturday 2/11 or Sunday 2/12). Comment on this post by Saturday 1/14/17 telling me what your favorite gluten-free product is and why you love it so. I will select five people randomly on Sunday 1/15/17. 

 

 

Fully Loaded

The holidays are here and we are ready to eat all the things! Tomorrow we are having a Christmukah Eve potluck with our friends. Sunday we are having Christmas Day potluck with the same group of friends. Because why have one holiday meal if you can have two?

Last night we had company over for dinner, which gave us a good opportunity to do a dry run of holidays diabetes management. In line with how we handled Thanksgiving dinner last year, I decided to be aggressive with insulin and rely on Dexcom to monitor trends. I eyeballed the meal, overestimated the carb count, gave V a generous amount of insulin upfront, and spread out the other half of the dose over three hours. She wanted more dessert and we said yes, and gave more insulin. “Mom, do you realize I already have 11 units onboard?” “Yep. Give yourself more!”

All evening V’s BG stayed in the 130-180 range, which is fantastic. She gave herself some insulin before bed, which brought her into a nice low 100’s range for the duration of the night. It was a thing of beauty. This weekend’s goal: replicate this as closely as possible.

It was time to change V’s pod tonight. I was about to fill it with around 170 units of insulin, which normally lasts for 3 days with some extra to spare. Then I remembered about all the eating that will happen this weekend. For the very first time in three years of pumping, I loaded V’s pod with 200 units, filling it to the maximum capacity. Pod is fully loaded and we are ready!

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Wishing for good BG numbers this holiday weekend

 

 

ROIT1D 3 of 3

Early in the year, I made a commitment to run three half-marathons and fundraise for Riding on Insulin. I wrote about it herehere and here.

On November 12th I fulfilled my racing and fundraising commitments by completing my third half-marathon and reaching my fundraising minimum.

This was one of my favorite races. It was extremely well-organized and the course was absolutely gorgeous. Even though it was mostly downhill, I did not set a PR (Personal Record). Because, well, true to my running hat, I run like the winded. But it meant so much to me to complete it and have my family celebrate with me at the end. This one was for V and for all other T1Ds who live their lives fully and don’t allow diabetes to stop them from doing what they love.

Thank you ROI for providing inspiration for me and our entire family!

A Letter of Hope

I am going to kick off November – Diabetes Awareness Month – with a letter of hope. It’s a brilliant idea of Maureen at Mumoftype1 to include these letters in hospital care packages for families of newly diagnosed T1 kids.

Dear family of a newly diagnosed child:

It’s undoubtedly a really hard time for you now. Your world has been turned upside down. You may be feeling scared, overwhelmed, sad, frustrated. You are probably bombarded with so much information and wondering how on earth you’ll be able to remember half of it, let alone be able to do all the things you need to do to take care of your child.

I remember this time so well. Like many other families, diabetes was the last thing on our mind and, in fact, we had no idea what Type 1 Diabetes was. I remember how, in the first days after diagnosis, I was wishing that we could fast-forward a year, to a point where we would not feel so overwhelmed, where we knew what we were doing and at peace with our new normal.

Now that we are more that three years in, I am going to tell you this: it will get better. I promise. It is a steep learning curve but before you know it, you will learn and do so much. You will become the boss of diabetes!

As much as you  can, embrace the hand you’ve been dealt. Dive in and learn. Ask questions, do your research. Learn together with your child. The more you understand about diabetes and its management, the more empowered and confident you will feel, and it will trickle down to your T1 child and the rest of the family. By now I feel like I’ve earned my honorary endocrinology degree and our daughter earned a title of a true diabadass. We have both skills and confidence to handle any situation diabetes can throw at us and it gives us a peace of mind and a feeling of pride and accomplishment.

Diabetes does not stop our daughter from doing what she loves. Be it sports, or playdates, or camps, or sleepovers, or traveling – she continues to do it all. You will learn how to make necessary adjustments, get the right kind of support and ask for appropriate accommodations. The question is not whether your child can do something with diabetes, but how it can be done. If there is one thing that I want to convey in this letter, is that you will learn how to work diabetes management around your life, not the other way around. It’s not always simple and there will be many hurdles to overcome, but I encourage you to start thinking about this right away. We don’t have a choice about having diabetes in our children’s lives, but we have a choice of how to deal with it and how to make the best of it. 

So, welcome to this crappy elite club. Did I mention that this club is full of amazing people? Please reach out to other T1 families in your community and online. Your local JDRF chapter is a good place to start. Our fellow d-peeps are an incredible source of support, encouragement, and wisdom. Our daughter also benefits immensely from having other T1 friends in her life.

Hang in there. Trust yourself and trust your child. T1 kids and families are strong and resilient. You got this. And all of us here got your back. You may not know us but we are in your corner. You are not alone!

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Sound of silence

V asked to take a little break from Dexcom. Just for a day or two, she said, and then we’d put it back on. It’s been two weeks and counting. Sometimes you don’t realize how much something affects you until it’s no longer there. This break is helping me realize that I have a major case of alarm fatigue.

These two weeks have been so much quieter. No more daily high and low alerts. No more waking up in the middle of the night to false alarms. No more buzzing and beeping in the middle of various activities. Mind you, there are plenty of other beeps that keep our senses stimulated. The “Beep Beeeeep, Beep Beeeeep” of the pod, one hour after we change it or a few hours before it expires.  Or the “Click Click Click Click Click STAB!” sound of cannula insertion. Or the “SCREEEEEEEAAAAAAACHHHHHHHHHH” song of its people the pod sang to us when it failed this morning. But those are far less frequent noises compared to the daily onslaught of Dexcom alarms.

There have been times here and there I really missed our “Deckie.” V was not feeling well for a couple of days last week and I wished I had the data to better fine-tune her basal rates.  There were a couple of nights we had to get up in the middle of the night and test, instead of being able to glance at V’s BG on our phones. There were several times it would have been so much more convenient to dose by Dexcom instead of having to test. And there were a couple of times I would have treated high BG a lot more aggressively had I had Dexcom trend data to inform me of how BG was responding.

Despite mentioning here and there that she wanted to put Dexcom back on, V does not seem eager about it, and we are not pushing. Truth is, we are enjoying the sound of silence. In the meantime, we are finding value in going back to basics, staying in tune with V’s body, letting go of micromanaging BG, and using our spidey-sense to make dosing decisions. Tonight V woke up, got out of bed and came downstairs to tell me she felt really low. Indeed, she was 44. Perhaps we would have caught it much earlier with Dexcom, but we caught it anyway, treated, and back to sleep she went. A few days ago, she was 56 after intense swim practice. It would have been so much easier if we could see her BG trend on Dexcom. But V asked me if she could wait it out a little and not treat because she felt OK and because her BG often tends to shoot up after practice. I agreed. Sure enough, 15 minutes later she was 65, and settled on a solid number in lower 100’s within an hour.

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No Dexom? No problem. She scores 100 anyway!

This break won’t last forever. V’s middle school sleepover is approaching in a few weeks and at that time wearing Dexcom will not be negotiable. We will take it one day at a time.  And maybe there is room for a compromise? We could turn off all alerts altogether and use Dexcom solely for trend data. Or we could change low alert from 75 to 55, and high alert from 225 to 350, in order to not miss more serious lows or highs. Or perhaps my alarm fatigue will be diminished so much that I will be ready to go back to our old settings and put up with the alerts in exchange for easier and more precise BG management.

This time will come soon enough. Today, I am letting go.

 

 

ROI = Awesome

Riding on Insulin unveiled their snowboard/ski camp schedule for 2016/2017 and it broke my heart a little. There is no longer a camp within an easy driving distance from us. The closest camp is a monster of an 8-plus hour drive, and that’s in ideal conditions. I don’t know what we will do. On one hand, of course we really want to go. On the other hand, we can’t justify two days of solid driving for one day of camp. And travel expenses plus lodging won’t be cheap either. But we really want to go! But we most likely won’t.

I was discussing this dilemma with my running friend during a recent long run. Oh yes, by the way, I signed up for my third half marathon. I’ll be running Revel Canyon City half on November 12th! So I am minding my miles and getting ready for it. And there is no better opportunity to talk through my dilemmas than on a long run with a good friend. I don’t always find solutions but more often than not I find clarity.

So as I was weighing the pros and cons of going, I had an epiphany of sorts. Why do I want V to go to ROI camp so badly? Surely we can find cheaper skiing lessons nearby. She’s good at managing diabetes and we can stay close by if she needs support. We can do it in a way that is fun and safe. But ROI is so much more than snowboarding/skiing lessons in a safe environment. To me it is all about the people. ROI volunteers are the people I want V to look up to. Not just because many of them are amazing athletes with Type 1 Diabetes. What I love most about ROI peeps is their passion for life, their determination and ability to live life to the fullest, their perseverance in the face of challenges, their desire to push themselves, and their infectious enthusiasm. That is a lot to love and that is the primary passion driving my own ROI fundraising.

Yesterday, 40 ROI volunteers competed in Ironman Wisconsin. 20 of them have Type 1 Diabetes; rest are family and friends. They raced their hearts out and I am so proud of them! They also fundraised their hearts out to grow the program and make camps more affordable and numerous.

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Thank you ROI volunteers for everything you do. Even though we may not be able to make it to camp this season, you are still giving all of us an example of how to live with T1D.

It is with renewed commitment that I carry on with my training and fundraising as a ROI Global Athlete. Please support my efforts by making a donation to RIO.